Why Am I Here?

“Why am I here?”

 You would not believe how many times I say this these days.  No, I don’t mean that I’m getting all philosophical on you.  I’m talking I get somewhere and really don’t know why I’m there.  This happens almost every time I go to the garage.  My garage is where I keep glassware, canning supplies, and other kitchen related items that I don’t have room for in the house.  It’s also the home of our two big freezers.  So I go to the garage at least once a day.  And nearly every time, as soon as I step inside I say, usually out loud, “Why am I here?”  The garage sits about 20 feet from the house, which apparently makes for just long enough of a walk for me to acquire amnesia these days.  The problem is not that the required information doesn’t stick.  Oh, it’s in there, but good luck retrieving it!  Usually, within a minute or so of asking myself why I’m there, and after the application of much concentration, I’m able to remember why I came.  But not always.

 I try to warn people that I don’t remember things, but they don’t seem to get it.  They say things like, “I’m the same way!”  Ha, ha—no, you’re really not.  Thanks to tamoxifen, I just lose information in my brain somewhere.  It’s like my brain is the junk drawer of my body or something.  Sure, what I need is in there somewhere, but I’ve got to mentally dig through a bunch of twine, pencils, scotch tape, and a nut cracker to find it. 

 Two weeks ago I was driving into town to take Mini Me to piano lesson.  In a deviation from the normal routine, I was planning to run by Goodwill before hand and drop off some items.  So, we ride into town, pass the turn to piano, and head for the Goodwill.  Except as we approached the intersection where I’d need to turn, I suddenly did not know what I needed to do.  “Do I need to turn here?  I don’t remember where I’m going. Where am I going? Think, think, stupid brain, where am I going?”  Tick tock tick tock.  Finally, at the last second I remembered, “Oh yeah, Goodwill,” and made the left turn.  Then last weekend, I was getting ready to open a can of tuna.  I carried the tuna over to the drawer where the can opener is kept, but when I got there I just stared at the contents of the drawer.  “What am I looking for?  I need…something.  I must need it out of this drawer since I opened it.  What am I doing?  Uh…opening a can.  And what’s the tool I need for that?  Uh…”   Really, it should not take so much effort to remember that you need a can opener to open the can you are holding in your hand.

 Either of those things ever happened to you?  Probably not, unless you’re on tamoxifen.  They never used to happen to me, either.  Thankfully I have both a sense of humor and a supportive spouse.  A big reason why I‘m able to laugh at these incidents is because I cling to the assumption that once I’m off of tamoxifen, everything will go back to normal.  But it’s not all bad anyway, because like I said I have a supportive spouse.  Hubster has been great about recognizing that the tamoxifen has caused memory recall issues for me.  So, what’s he gonna do, get mad?  No, because I can’t help it, right?  I’m not forgetful because I’m an insensitive and self-absorbed lout who is too wrapped up in herself to remember to pick up Hubster’s toothpaste at Walmart.  Nope, it’s the drug’s fault–I’m handicapped!  And while I would never, ever exploit this, it does offer a certain advantage for those times when I am just an insensitive, self-absorbed lout who got too distracted by a new bottle of nail polish to remember the toothepaste.

The Pink Mafia

There haven’t been too many haters show up here.  Except for Jamie, the person who told us all that we were collectively lame and needed to “get real” because we made fun of breast cancer Barbie.  Funny, I haven’t heard a peep out of ol’ whatsherface since I explained that I’ve got a 10 inch scar across my chest that gives me the right to dis’ BC Barbie all the livelong day.  Of course, it could be that she was just so disgusted by our fun that she’s never come back.  But I like to think that it was the verbal beat-down  she got that silenced her.  Take that, fun sucker.

 Sometimes, I write things that I know might provoke those humor vigilantes out there.  Of course, I do enjoy a certain amount of immunity.  You know, one of the perks of having The Cancer is the immunity you gain.  I think this may be rooted in the pity people feel, which would probably annoy me if I really thought about it, but I don’t.  I just enjoy the benefit. 

 In real life, the Cancer Immunity was way more powerful when I was bald.  Shoot!  You can get away with just about anything when it’s obvious you’ve got The Cancer.  If I were smart, I would have robbed a bank or held up Starbucks.  Chemo brain would have ensured that I forgot where I left the getaway car, and I’d have had to run away on foot.  Sure, I’d be easy to spot—you don’t see too many bald women running around with big bags of money slung over their shoulder (like a continental soldier)—but gee, can you see me getting arrested like that?  No way!  They’d feel too sorry for me. 

 But these days, I don’t get much protection from The Cancer Immunity, because it’s not obvious to the random person I run into.  Dang it.  I don’t want The Cancer, but I want Cancer Immunity forever.  I do get a little bit of that when I blog though, since the blog started because of The Cancer and I continue to talk a lot about The Cancer.  However, there is one fear that always looms over me when I post snarky things about breast cancer awareness: the fear of getting hated on by The Komen. 

 So, the other day when I got an email from Mildred Jones* with the subject line “Susan G Komen for the Cure” my mind flew immediately to all the smart-alecky things I’ve ever written about the pink ribbon, survivor walks, etc.  Oh crap.  It’s the Pink Mafia.  I’m in trouble now.  They’re gonna bring that pink ribbon cement truck over here and make me some new shoes to go swimming in. 

 I must just have a guilty conscience.  All Mildred really wanted was to see if I was planning to be a team captain at the Race for the Cure in October.  Guess she hasn’t read my blog after all. 

 *Not her real name, because like I said, I don’t want to anger The Komen.  Nothing to see here, Komen.  Move along.

If I Only Had a Brain…I Could Think of a Snappy Title

I just realized that it’s been almost two weeks since the last time I posted.  A reader (Hi Theresa!) emailed me and asked if I was doing okay, and I thought “Well, that’s odd, it hasn’t been that long since I posted.”  Then I checked.  Yikes.  I guess it has been a while.  As usual, part of this is because life keeps rolling on, whether a girl has something to write about or not.  And sometimes I just don’t have much to say.  But it would be dishonest to say that either one of those was the case this time. 

 The truth is, I’ve been struggling.  I think that I have Tamoxifen to thank for this.  But knowing the cause doesn’t necessarily diminish the problem, and for the past week or so I’ve just been in a really crappy state of mind.  I do the things I have to do, but anything above that requires a conscious decision to suck it up and do it whether I want to or not.  Which I don’t.  And you can’t make me.  So there. 

 Now, I don’t want those of you that I’ve been around in the past week to think I was totally trying to fake you out.  I’m still up for joking around and chit-chatting.  But, I just have this underlying dullness of brain and general lethargy going on, and it seems to be getting gradually worse.  I’m starting to think that Tamoxifen is making me depressed.

 I hate to even say that.  It’s sounds so “wah wah wah wah waah”.  And trust me, I’m totally the least sympathetic person you know when it comes to stuff like this, and I’d be the first one to tell me to suck it up.  I think that’s part of why it’s getting to me so much—because it’s making me feel totally not like myself, and I’m about up to here with The Cancer and it’s accompanying meds trying to steal my identity!

 You guys have heard me gripe about the Tamoxifen before.  I believe it’s responsible for the fact that I can’t remember squat.  Chemo made me feel fuzzy headed, but I had about 5 months between chemo and Tamoxifen, and I noticed this persistent short term memory thing after I started the Tamoxifen.  I can handle the memory thing.  It’s kind of amusing to me, and I’ve learned to write most everything down—which works great since I’m a compulsive list maker anyway.  Really.  It bothers Hubster more than it does me.  But it’s discouraging to me that it affects my vocabulary—I’m trying to write, for crying out loud!  How am I ever going to get a book deal if I can’t even beat my 12 year old at Quiddler anymore?

 And this mood thing is really making me fed up, and considering that I have to take Tamoxifen for 5 years I’m beginning to wonder if there will be anything left of me by the time I’m done.  Can any of my cancer girls out there relate?  Do you feel like you’ve got a starving brain sucker on top of your head 24/7?  Have you been through this and can tell me that it’s only temporary?  Or do I need to go see the wizard and ask for a brain?

All That

There’s not much more frustrating to me than writing a nearly complete blog entry, only to have the computer lock up and lose the entire thing. My frustration has been compounded by the fact that my post-chemo brain doesn’t have near the retention that it used to. Granted, I’ve never been known for my steel trap superhuman memory powers. However, what I have always been blessed with is the ability to remember anything funny and to remember, nearly verbatim, anything I’ve written. Perhaps the latter is due to writing mostly funny stuff. I don’t really know. What I do know is that this ability has apparently been greatly diminished by four months of being strung out on Adriamyacin/Cytoxan & Taxol.

So, when I lost the blog entry, I was quite discouraged because other than the general storyline and one funny phrase, I couldn’t remember what I’d written. This also explains part of the reason why it’s taken me so long to update, though mostly the reason is that I haven’t been home much, and when I was I haven’t had anything terribly entertaining to say.

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I have an appointment with Dr Haerr on November 6. Not sure what that will involve exactly. I’m hoping I can start radiation ASAP so I can finish before Christmas—there I go, having it all planned out ahead of time again. Everyone I’ve talked to who has done chemo followed by radiation says radiation is no biggie. I think the people who whine about it are the ones who’ve never done chemo.

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I’ve discovered that my hair has apparently grown past the point of looking like a chemo cut, and into the land of I Did This to Myself on Purpose. Furthermore, I have also observed that girls with this sort of purposeful ‘do attract a certain kind of guy. These morsels of enlightenment were gained at none other than the State Road 46 Walmart—second only to downtown Bloomington in per capita freakiness.

As I plopped my purchases on the counter, the cashier, a 20-something guy about 6’5” with shoulder length dyed black hair, goatee, and multiple tattoos gave me the standard, “How are you today?” Says I with a big smile, because I know cashiers spend most of their days either being ignored or griped at, “I’m doing good. How are you?” He replied that he was doing okay, then he looked at me and said, “I really like your hair. You know, not many people can pull that off, but you look really good.” At this point I’m thinking that he’s just being nice to the poor cancer girl, but since I’ll take any compliment I can get I said, “Thanks! I just finished chemo a few weeks ago.” The look that flashed across his face said, “Uh-oh, did I just screw up?” But when he saw I was still smiling, he could tell I wasn’t the least bit offended.

Standing there waiting for my total, I started doing a little people watching. It was then that I noticed another guy. This one was 20-something, with short spiky bleached hair and big thick silver hoops in his ears. He was sitting on a bench looking at me. As I proceeded to pay for my purchases and leave I could see out of the corner of my eye that he continued to watch me as I walked past. He was checkin’ me out! It was then that I realized that the haircut that I thought was screaming, “Hey, look at the cancer girl!” is apparently screaming something more along the lines of, “Hey you hunk of dyed, pierced and tattooed manliness, what’s a freaky guy like you doing in a rollback the prices, made in China kind of place like this?”